Links

(for more information on some of Emily's "hurdles")

NICU/Preemie Sites

Does a Preemie Ever Stop Being a Preemie

Extremely Low Birth Weight Infants

For Families And Friends

Low Birth Weight Babies

Neonatal Network, The Journal of Neonatal Nursing-Mother Baby Journal, The Journal of Family Centered Nursing-NICU Ink Books

Neonatology on the Web - Parents

Neonatology on the Web Neonatal Medications

Pediatric Database - PEDBASE

Preemie Parenting - Resources for Parents

The Tiniest Babies

Understanding Preemie Parents

When Your Baby's in the NICU

An Introduction to Extremely Premature Babies

Kangarooing Our Little Miracles

Premature Infant

Infant Loss/Disability

Center for Loss in Multiple Birth (CLIMB)

A Place To Remember

Internet Resources for Special Children (IRSC)

National Dissemination Center for Children with Disabilities

Our-Kids--Internet group devoted to raising kids with special needs

Helpful Organizations

Twin To Twin Transfusion Syndrome Foundation

American Lung Association

National Organization for Rare Disorders (NORD)

Eyes

ROP Information and Resources

ROPARD Association for Retinopathy of Prematurity and Related Retinal Diseases

Gastroenterology

GERD Word - Reflux Information

PAGER - Pediatric & Adolescent Gastroesophageal Reflux Assoc

Lungs/RSV Links

BronchoPulmonary Dysplasia (BPD)

RSV Info Center

The RSV Prevention Information Center

Heart

Patent Duct Arteriosus

Some of Emily's Medications

(in the NICU and at Home)

Sensory Issues

Coping with SID

FAQ's about Sensory Integration

Oral Defensiveness Activities

Promoting Sensory Integration

Sensory Integration Links-New

Sensory Integration Links

Sensory Integration-Comeunity

SID in Young Children

Special Child- Information Avenue Archives

Tactile Defensive Activities

Cerebral Palsy

United Cerebral Palsy

Cerebral Palsy: A Guide for Care

Neurocare Center

Brain/Lissencephaly

The Lissencephaly Network

The National Institute of Neurological Disorders and Stroke

The Whole Brain Atlas—MRI images

Brain Injury Association

Speech & Feeding

Mealtime Hints for Food Aversion

Nutrition Guide for your Child

Failure to Thrive

American Sign Language Online Dictionary

Picture Exchange Communication System (PECS)

Pediatrics Speech and Language Development Guidelines

Expressive/Receptive Language Chart

Developmental Milestones

National Institutes of Health Guidelines

Child Development Institute (overview)

Child Development Institute (Speech and Language)

Child Development Institute (Cognitive)

Baby Center (Birth to Three "What to Expect")

Growth Calculator

Medical/Therapeutic Sites

American Medical Association

American Speech-Language-Hearing Association

American Physical Therapy Association

AOTA - American Occupational Therapy Association

National Perinatal Association

American Academy of Neurology

American Academy of Pediatrics

American Academy of Opthamology

American College of Cardiology

Center for Disease Control and Prevention

Food and Drug Administration

National Institutes for Health

Books

Pre-Feeding Skills, 2nd Edition A Comprehensive Resource for Mealtime Development

by Suzanne Evans Morris, PhD, CCC-SLP, and Marsha Dunn Klein, M.Ed., OTR/L

Evaluation and Treatment of Pediatric Feeding Disorders : From NICU to Childhood

by Cheri Fraker and Laura Walbert

The Out-Of-Sync Child: Recognizing and Coping With Sensory Integration Dysfunction
by Carol Stock Kranowitz, Larry B. Silver (Foreword)

Infant Massage--Revised Edition : A Handbook for Loving Parents
by VIMALA SCHNEIDER MCCLURE

What's Going on in There? : How the Brain and Mind Develop in the First Five Years of Life
by LISE ELIOT

Preemies : The Essential Guide for Parents of Premature Babies

by Dana Wechsler Linden, Emma Trenti-Paroli, Mia Wechsler-Doron, M.D.

The Happiest Baby on the Block : The New Way to Calm Crying and Help Your Newborn Baby Sleep Longer
by Harvey Karp

Empty Cradle, Broken Heart: Surviving the Death of Your Baby
by Deborah L. Davis